#EBW26 Previews: 6B: Secure, fair and smart: Best practices for biobank data integration
This session uncovers strategies to protect donor privacy while enabling cross-border data exchange through robust governance, clear agreements and legal compliance. Experts will address GDPR, data residency and practical models for Data Transfer and Processing Agreements, highlighting how federated biobanking networks connect with healthcare data ecosystems to accelerate discovery and innovation.
Speakers included in this session:
- Michaela Th. Mayrhofer – Negotiating trust
- Vera Frankova – Building a national denomic data repository: Ethics and governance by design
- Philipp Ortner – A cryptographic framework for secure biobank data collaboration
- Joanna Ćwik & Kacper Bednarek – From local management to federated networks: Resource optimization and ETL automation using “a-small-fire”, BBMRI-ERIC Federated Platform and eBiobank
- Bella Anna Binoy – From data discovery to federated analysis: Supporting the research journey
This session will be chaired by:
Prof. Urban Bren
Dr. Urban Bren is a full professor in the area of Biophysical Chemistry at the Faculty of Chemistry and Chemical Engineering, University of Maribor. He is the National Coordinator of the Slovenian biobanking node BBMRI.si working on nonhuman biological samples and bioinformatics.
Błażej Marciniak, M.Eng.
Błażej Marciniak is Head of the Polish Node of the Federated European Genome-Phenome Archive. Since 2014, he has been associated with the Centre for Digital Biology and Biomedical Science – Biobank Łódź® at the University of Lodz. He is responsible for the development of IT services and infrastructure and focused on the digitalization of scientific resources and building digital competencies of the future.
Session details
- Date: Thursday 21 May
- Time: 9:00 – 10:30